Hereditary Colon Cancer Association: The Power
of Patient Advocacy
Beth Schreiber
Executive Director
The Hereditary Colon Cancer Association (HCCA) is a non-profit advocacy
group established to provide information to patients, families, and
friends of those who have familial adenomatous polyposis (FAP/Gardner
syndrome), Turcot syndrome, juvenile polyposis, Peutz-Jegher syndrome,
attenuated adenomatous polyposis coli (AAPC), and hereditary nonpolyposis
colorectal cancer (HNPCC).
Our goal is the prevention of colorectal cancer through education,
advocacy, and research. The HCCA will put out a triannual newsletter
with the latest updates on these rare hereditary diseases, our Website
address, and information on symposia that are open to both medical
professionals and interested persons and patients. Our annual conference
will provide an opportunity for families to network and also meet
some of the leading specialists in the treatment of hereditary colorectal
cancers.
We need you to help us accomplish these goals. The work we do
now and in the coming years may very well change our lives and protect
our children's futures. Please contact us to be put on our mailing
list for the HCCA newsletter and conference information.
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