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  Hereditary Colon Cancer Newsletter

Summer 2000
Your Opinion Matters




Please take a few minutes to answer this brief survey about the Generation to Generation newsletter. Your opinion is very important to us and will help us design future issues to better meet our readers' needs. Please print and fill out the questionnaire below and send it to the address given at the end of the page. You do not need to include your name or address to reply to this survey Your responses will be kep confidential.

Please circle the number of your answer to the following questions.

    Stongly
Agree
Agree Neither
Agree nor
Disagree
Disagree Strongly
Disagree
1. The articles in the newsletter are easy to read and understand.
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2. The newsletter provides useful medical and research information.
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3. The newsletter provides useful information about the emotional impact of cancer and genetic conditions.
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4. The newletter has increased my understanding of hereditary colon cancer.
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5. I enjoy receiving the newsletter.
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6. Please check all that apply:
  I have been diagnosed with colon cancer
  I have a relative or friend with colon cancer
  Myself or a member of my family has been diagnosed with a hereditary colon cancer syndrome. If so, which condition?
    familial adenomatous polyposis (FAP)/Gardners syndrome
    hereditary non-polyposis colon cancer (HNPCC)
    Peutz-Jeghers syndrome
    Juvenile polyposis
    Other ____________________________________________
  I am a health care professional
If so, are you a:
    Doctor Social Worker Registry Coordinator
    Nurse Genetic counselor Other _____________
  What is your area of specialization?
Gastroenterolgy Surgery Oncology Internal medicine Genetics
Pediatrics Endoscopy Other ________________________
7. Which of the following topics are you interested in learning more about in future issues of the newsletter. Please check all that apply.
Screening recommendations/treatment Genetic testing
Genetic counseling Insurance and legal issues
Chemoprevention research Reproductive options
  Support resources for individuals with cancer Support resources for affected/or at risk children
Other ________________________________________
8. Have you ever shared the newsletter with anyone else?    YES     NO
  Please circle all that apply.
Health care provider         Teachers                 Family members
 Friends                  Other_______
9. Do you have access to the Internet?     YES     NO
10. Do you currently use online resources such as message boards, mailing lists, or chat rooms?       YES      NO
11. If so, what topics do they address? __________________________________________
12. What format would you prefer participating in? Please order the options with 1 being most preferred and 3 being least preferred.
A. Mailing list (members communicate through emails distributed to the entire group) _____
  B. Message board (members visit a website where they can post and read message) _____
  C. Chat room (members visit a website communicate with each other in real time) _____
13. Do you think access to the service should be (please circle your choice).
A. Open to the public     B. Require registration and a password to access the service
14. Would you like the networking service to be monitored by health care professionals to answer questions and respond to inquiries?   YES   NO
15. How likely do you think you would be to use a service like this?
  Very likely    Somewhat likely    Unsure    Somewhat unlikely
Very unlikely
 


NAME: ____________________________________
PHONE: ____________________________________
ADDRESS: ____________________________________
MAIL TO: ____________________________________
   
Wendy Kohlmann, M.S.
Department of Behavioral Science, Box 243
The University of Texas M.D. Anderson Cancer Center
1515 Holcombe Blvd.
Houston, TX 77030