6. |
Please check all that apply: |
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I have been diagnosed with colon
cancer |
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I have a relative or friend with
colon cancer |
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Myself or a member
of my family has been diagnosed with a hereditary colon cancer
syndrome. If so, which condition? |
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familial adenomatous polyposis
(FAP)/Gardners syndrome |
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hereditary non-polyposis colon
cancer (HNPCC) |
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Peutz-Jeghers syndrome |
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Juvenile polyposis |
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Other ____________________________________________ |
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I am a health care professional
If so, are you a: |
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Doctor |
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Social Worker |
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Registry Coordinator |
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Nurse |
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Genetic counselor |
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Other
_____________ |
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What is your area of specialization? |
8. |
Have you ever shared the newsletter
with anyone else? YES NO
|
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Please circle all
that apply. |
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Health care provider
Teachers Family
members
Friends Other_______ |
9. |
Do you have access
to the Internet? YES NO |
10. |
Do you currently use
online resources such as message boards, mailing lists, or chat
rooms? YES NO
|
11. |
If so, what topics
do they address? __________________________________________ |
12. |
What format would you
prefer participating in? Please order the options with 1
being most preferred and 3 being least preferred. |
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A. Mailing list
(members communicate through emails distributed to the entire
group) _____ |
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B. Message board
(members visit a website where they can post and read message)
_____ |
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C. Chat room
(members visit a website communicate with each other in real
time) _____ |
13. |
Do you think access
to the service should be (please circle your choice). |
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A. Open to the
public B. Require registration
and a password to access the service |
14. |
Would you like the
networking service to be monitored by health care professionals
to answer questions and respond to inquiries?
YES NO |
15. |
How likely do you think
you would be to use a service like this? |
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Very likely
Somewhat likely
Unsure
Somewhat unlikely
Very unlikely |