Summer is often the time of year for family reunions
and visiting relatives. As more and more people become interested
in researching their family history, these gatherings are often
wonderful opportunities to gather information about your family
history. An indication of the popularity of researching family histories
is the burst of genealogical resources that have been developed.
The Internet has over 41,000 sites for family history research.
One benefit of tracing your family's past is finding
out about your family's medical history. This in turn may help you
track the history of cancer in the family or determine whether there
are factors increasing the risk for heart disease, diabetes, and
other conditions in your family. The results of your search can
provide you and your family with information your doctor and genetic
counselor can use to determine what types of screening or preventive
measures may benefit you.
To be most useful, however, this information needs
to be as detailed and accurate as possible. Unfortunately, tracking
down past family medical information is not always easy. Therefore,
in this article I will give some steps that will help get you started.
Step 1:
Make a list of your relatives, leaving some
space between each line of information.
This will give you a good starting point for your search. Genetics
professionals often put this information into a picture form called
a pedigree. This helps keep track of who is in the family, and how
they are related to each other. There are websites and software
programs available that can provide forms you can use to organize
this information.
Step 2: Contact family
members. Some families have individuals who tend to be
the keepers of family history. They may be the person who plans
family gatherings, and they can be very helpful. If you can locate
such a person in your family, start your search by calling them.
They probably already know a lot of the information you need. Some
families also have a family Bible or other heirloom in which family
information has been recorded and passed down.
If there are no sources like this in your family,
you may need to contact different people before obtaining the information
you need. Faxes, letters, e-mails or phone calls can be used to
ask other family members for information. Different families like
different methods. People-finder search engines on the World Wide
Web can help track down family members whom you have lost track
of.
The questions that need to be asked about each
person on your list are:
- Date of birth
- Date of death and cause of death
- Cancer history, location or site of cancer,
date diagnosed, age of family member at time of diagnosis, whether
there was more than one primary (a new or different cancer and
not the spread of the cancer to a different location)
- History of colon polyps or any other medical
problems.
Finding the answers to these questions will not
always be easy. Different family members may remember things differently.
It may be necessary to obtain copies of medical records to sort
out incomplete or conflicting information. Written consent is needed
to access someone's medical records, and if a person has passed
away, their next of kin will need to give consent. The next of kin
is usually a spouse, or if the spouse is also deceased, an adult
child. Your doctor, nurse or genetic counselor can tell you if this
medical information is needed and help you obtain the necessary
medical records. Death certificates, which are available at county
courthouses, can also provide useful information. However, death
certificates only indicate the cause of death and do not include
information on other underlying medical problems that a person may
have had.
Though researching your family history will be
a big job, what you learn may reveal interesting facts about your
heritage, but more importantly, it may uncover critical information
about your family's medical history.
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